ADDS DATE AND LOCATION PHOTO WAS TAKEN – In this 2013 photo provided by Boston Children’s Hospital, Brian and Brandon Rojas pose in the living room of their home in Dover Plains, New York. The photo was taken before the
ADDS DATE AND LOCATION PHOTO WAS TAKEN – In this 2013 photo provided by Boston Children’s Hospital, Brian and Brandon Rojas pose in the living room of their home in Dover Plains, New York. The photo was taken before the pair were diagnosed with adrenoleukodystrophy. Study results published Wednesday, Oct. 4, 2017, by the New England Journal of Medicine showed an experimental gene therapy treatment seemed to help boys with the inherited nerve disease featured in the movie “Lorenzo’s Oil.” Although the news is bittersweet for the Rojas family, as Brian was able to get the treatment, while Brandon, whose disabilities from the disease had progressed further, was not. (Courtesy of the Rojas Family/Boston Children’s Hospital)
